So I have a cyst that seems to be getting ready to pop (yes… even though I’m right around the third trimester – either I hit it Monday, or last Monday was the big day, depending on where you look) I’m still dealing with cysts… I seem to have had them the whole pregnancy.
I decided awhile ago I was going to come lay down in our bed and take a nap…. after laying here for a bit I started having a lot of pain hit….. running from just below my lowest ribs on my left side, to mid thigh… .eventually it started running all the way down my left to my foot….. I ended up nauseated and having just a lot of pain…
Thankfullly I still had the laptop in our room from last night when I was trying to wind down for sleep… so I was able to roll over and grab it, start it up, and message Johnny asking him to get me ginger brew (Reeds Extra Ginger Brew is a wonderful thing), toast and some pain meds… and he did it for me. He then helped me sit up so I could actually use those things… and brought my glasses to me so I can lay here using the laptop and distract myself.
I’m so tired of cysts though… yet another sign I shouldn’t do another pregnancy… at least when I’m not pregnant they only happen every 3 cycles at the most frequent… they’ve been continuous while pregnant though. 😦

The good in all of this… that I had the laptop in here with me and was able to get Johnny’s help without having to drag myself out of bed (not sure how I’d have done so) and get those things… I think I’d have just stayed in bed sobbing until he checked on me in a couple of hours if I hadn’t had it. 😦

So cysts aren’t uncommon in my life. I rarely get documentation of anything but “functional” cysts, which have to do with ovulation, but I do end up with cysts every few months generally … I should say I get painful ones that often, I obviously get “functional cysts” every month when I’m not pregnant as I ovulate, but other than that. I have had endometriomas (two or three of htem at once) documented before, and I’ve had evidence of resolved cysts, but it’s odd for me to have anything actually show up… of course I also don’t go since I know they do resolve themselves one way or another… if I start having symptoms of something wrong with a cyst in the future I’ll go get checked, but so far they’ve never gotten dangerous.
I have had what is a suspected cyst once so far this pregnancy that resolved itself… even my OB agreed it sounded like a cyst, but by the time I was at an ultrasound appointment again 1) the pain had gone away and 2) I was far enough along that they couldn’t get a shot of my ovaries anymore. Today I noticed I’m having that pain on my left side now…. it’s just a certain type of pain, and usually since it’s pretty centered in an area it’s obvious it’s not just endo flares. We’ll see what happens this time around with the cyst. :/
In cyst related news… a family member (I will leave privacy intact and just leave it there, not my news to tell, other than how it affects me) has been diagnosed with PCOS recently. Please keep her (and her spouse) in your thoughts as they deal with this and the infertility related to it. Anyway… this helps strengthen my wonder if maybe I have a mild case of PCOS and that’s why I have these cysts, or at least why I get them as often as I do. There are a couple of family members who have had cyst issues in the past… one I suspect endo in because of the family connection there, and one who may have PCOS from what I understand… though I have heard this through another family member, the PCOS suspicion in this other relative has not been diagnosed (though there was apparently cyst activity there, again heard through another family member, who should be in the know), and the family member in this instance never mentioned cysts or any of that to me. So this could be another part of the puzzle for me. All I know… something causes me to regularly have cysts, which (thankfully) resolve themselves.
Other things (well thing…)…. I have a cold sore, and it’s driving me nuts. And… I can’t treat them the way normal people can treat theirs…. I don’t know what it is about the lupus becoming a more active part of my life, but for some reason instead of healing my cold sores, all the creams and things just make them last longer and get worse. 😦 I have yet to find (in the past two years or so) a treatment I can actually use. 😦 Hopefully one of these days I’ll at least find a way to take some of the sting out again….
A friend recommended apple cider vinegar on them… I’m going to try that. She said it stings when you do it (not surprising considering it’s vinegar, but I am grateful for the warning), but if it shortens the time and nastiness of this cold sore, I’m all for it!!

I’ve heard these statements a couple of times lately. And I was so confused how that could be, considering I’ve had mind scrambling headaches for all of 2010 (or close enough, the first couple of days I may or may not have had them, I can’t remember now), it’s not been an easy year. After hearing the second time a week or so ago I started wondering what it was that was so different about how I looked, and what had changed that I was looking better. The friend who said these things the most recently also said “You were looking so pale, but you’ve got color in your face again!” and I wasn’t sure why that would be. After wondering for awhile I realized there are three things that likely (physically) contributed to the change. 1) I have not been running as many errands or going out as often. I’ve been out only 5 or 6 times that I can think of in the past month and a half. Maybe a couple times more, but definitely a lot less than I used to be. I used to run errands up to 3 times a week (usually no more than 2, but sometimes another errand would come up) so this is a significant change. I have been out for 3 doctors appointments, and have run errands just a few other times (thankfully in town, the trips out of town to the doctors have really been taking a lot out of me this year), so I haven’t been exhausting myself as much by going out. These headaches have kept me pretty close to home. 2) I’m on better pain meds. This actually started in December, just before Christmas, when I requested stronger pain meds because the low pressure systems coming through our area were causing so many pain issues for me. I have more energy, and (when not fighting an actual migraine or dealing with my cyst) I am able to be more active around the house, though I still stick to lower energy activities so as to not send myself into a flare. 3) Since I’m having all these headaches and am stuck in bed more often than I used to be, I’m getting more sleep, and even when I’m not sleeping, I am at least laying there resting. The cyst has complicated this as I’ve not been able to get very good sleep since yesterday morning, but I am still resting more than I was.
On top of that, although hearing “Get used to the pain and fatigue there is currently no treatment to help you get those more under control” was difficult… it had me down for a couple of days, but then I realized that it meant I had a more realistic view of how these diseases would affect my life, and I’ve been able to deal with that rather than continuing to have extremely high hopes of a sudden and drastic improvement. This is not to say I’ve given up hope or stopped fighting, but it does mean I have been able to deal better emotionally.
Also I realize certain vitamins and other things will help with my energy and pain levels, some of them I’m already on, others I can’t afford right now but plan to go back onto (magnesium I’m looking at you for one) when we have a bit more income again. Please don’t give me suggestions of treatments that “have helped so and so and it’s been miraculous” I’ve heard about a lot of things that way and quite honestly it gets old! On top of that I have a treatment plan laid out with my doctor, and am on medications (and other supplements) that could cause bad reactions when mixed with your suggestions! Both E and I (and my doctor as well) have researched the different treatments and things I take and discussed them, I don’t just willy nilly say “Hey, We’re adding this in now” or try something that someone recommends. And on that note, I turn to my friend Perpetual Spiral who wrote a post on this topic last year. She wrote it incredibly well, and has all the words I want to say on the topic of med/treatment/health suggestions in there.

I took some pictures of myself (face shots) the other night with the use of my webcam, and I have to agree that between my new hair cut and the things I listed above I do look better. For those seeing this linked on various social network sites that have pictures of me, I will be posting the new pictures soon, and you can compare to how I was looking before now. For those seeing this only through my blog, I will try to post pictures later today that show me both in the months leading up to now, and the pictures I took the other night… that post will be password protected (as usual with any identifying photo posts) so sorry for those who don’t have the password and who I don’t know… if you are interested in the password (or if you’ve lost it) let me know and I’ll try to get it off to you. 🙂

I’ve heard these statements a couple of times lately. And I was so confused how that could be, considering I’ve had mind scrambling headaches for all of 2010 (or close enough, the first couple of days I may or may not have had them, I can’t remember now), it’s not been an easy year. After hearing the second time a week or so ago I started wondering what it was that was so different about how I looked, and what had changed that I was looking better. The friend who said these things the most recently also said “You were looking so pale, but you’ve got color in your face again!” and I wasn’t sure why that would be. After wondering for awhile I realized there are three things that likely (physically) contributed to the change. 1) I have not been running as many errands or going out as often. I’ve been out only 5 or 6 times that I can think of in the past month and a half. Maybe a couple times more, but definitely a lot less than I used to be. I used to run errands up to 3 times a week (usually no more than 2, but sometimes another errand would come up) so this is a significant change. I have been out for 3 doctors appointments, and have run errands just a few other times (thankfully in town, the trips out of town to the doctors have really been taking a lot out of me this year), so I haven’t been exhausting myself as much by going out. These headaches have kept me pretty close to home. 2) I’m on better pain meds. This actually started in December, just before Christmas, when I requested stronger pain meds because the low pressure systems coming through our area were causing so many pain issues for me. I have more energy, and (when not fighting an actual migraine or dealing with my cyst) I am able to be more active around the house, though I still stick to lower energy activities so as to not send myself into a flare. 3) Since I’m having all these headaches and am stuck in bed more often than I used to be, I’m getting more sleep, and even when I’m not sleeping, I am at least laying there resting. The cyst has complicated this as I’ve not been able to get very good sleep since yesterday morning, but I am still resting more than I was.
On top of that, although hearing “Get used to the pain and fatigue there is currently no treatment to help you get those more under control” was difficult… it had me down for a couple of days, but then I realized that it meant I had a more realistic view of how these diseases would affect my life, and I’ve been able to deal with that rather than continuing to have extremely high hopes of a sudden and drastic improvement. This is not to say I’ve given up hope or stopped fighting, but it does mean I have been able to deal better emotionally.
Also I realize certain vitamins and other things will help with my energy and pain levels, some of them I’m already on, others I can’t afford right now but plan to go back onto (magnesium I’m looking at you for one) when we have a bit more income again. Please don’t give me suggestions of treatments that “have helped so and so and it’s been miraculous” I’ve heard about a lot of things that way and quite honestly it gets old! On top of that I have a treatment plan laid out with my doctor, and am on medications (and other supplements) that could cause bad reactions when mixed with your suggestions! Both E and I (and my doctor as well) have researched the different treatments and things I take and discussed them, I don’t just willy nilly say “Hey, We’re adding this in now” or try something that someone recommends. And on that note, I turn to my friend Perpetual Spiral who wrote a post on this topic last year. She wrote it incredibly well, and has all the words I want to say on the topic of med/treatment/health suggestions in there.

I took some pictures of myself (face shots) the other night with the use of my webcam, and I have to agree that between my new hair cut and the things I listed above I do look better. For those seeing this linked on various social network sites that have pictures of me, I will be posting the new pictures soon, and you can compare to how I was looking before now. For those seeing this only through my blog, I will try to post pictures later today that show me both in the months leading up to now, and the pictures I took the other night… that post will be password protected (as usual with any identifying photo posts) so sorry for those who don’t have the password and who I don’t know… if you are interested in the password (or if you’ve lost it) let me know and I’ll try to get it off to you. 🙂

And no energy to put it all together in a way that would make sense… so I’ll sum it up.
Headaches still aren’t gone (started somewhere between Jan 1 and Jan 4… pretty sure it was the 2nd) and they ended up worse again in the middle of the week last week (It’s Sunday today right? That would make it last week? It was the 3rd of Feb or the Wednesday right around then that they got worse again).
Had a period only 24 days after the last one.. .so a 23 day cycle, while on birth control. Getting ready to ask doc to take me off the med that is making me stay on the birth control as it’s not making much difference and I’m really tired of pumping that crap in my system.
After no cysts (that E or I can think of) since right before the first miscarriage (so last June) I seem to have one again. I should say no definite cysts, at one point in the fall I thought I had one again but I never had the pain from it popping, so not sure. Definitely having all the normal symptoms this time, we’ll see if it pops or if it resolves some other way? But sudden horrible pelvic pain (post period, at a point in my cycle where I should be in THIS much pain), a weird cycle leading up to this, lots of swelling on the left side of my abdomen, pain that centers on the left ovary when the rest of the pain is more under control, and ovary tenderness in the last few days (which I was chalking up to heading to ovulation, since I do still ovulate on birth control, it just keeps my lining thin enough to not implant)….
In other news I have two blog posts I want to point my readers to. I had another one but I can’t seem to find it or remember what it was.
First off I want to point all Interstitial Cystitis patients to Jeanne’s blog post about educating Congress about IC … she received an email about it from the ICA and they want patients to email them their IC stories. (Sorry for scrunching this in here Jeanne, I just know you word it all better than I could and I want to make sure the info reaches more IC patients…)
Secondly Kate at Busted Plumbing is doing a giveaway at her blog which I recommend for all people with fertility issues or infertility! I had a great post planned out just for this, but I have not been feeling up to doing anything with it, though I do want to spread the word (Sorry for bunching your contest in with everything else Kate) so… Please go see what it’s all about and take part if you are interested.
I think that is all I wanted to post about over the last couple of days (including this morning since a couple of these things just came to my attention) … sorry that it’s a shorter post and for not giving more info about the links… I’m just really unsure how to explain all of it right now.