August 30, 2014
I don’t know where to start to update, so I”m going to start with the latest that’s going on.
Still grieving Lily (as I’m sure I always will), but I’m feeling alive again.
I had another echocardiogram a couple months ago to check on my murmur. When I went to get my records for social security the hospital included the cardiology report. Someone I know, who is a nurse, read it and explained it…. NOT OFFICIALLY! The understanding of it is that I have two small murmurs, and I have some enlargement of my heart. Now, whether this is lupus or not, and what level of concern this is, I’ll find out on Sept. 11.
I’m still on prednisone because I ccan’t go below 5mg without neurological symptoms starting up. I’m pushing for a neuro work up when I see my rheumy.
I’m having a ton of foot pain…. the doctor I saw at the walk-in clinic thinks it is from my lupus, attacking the stationary joints in my foot. Xrays have been taken and I’ll find out more on the 11th.
Lupus just seems to be out to get me, even when I’m on 3 meds strictly for putting it into remission :(
The kids are great. Gamer started HS this year, and Duckling is in her last year of elementary school.
June 23, 2013
I don’t know why, but my IC is flaring again. Urgency, pain, incontinence … it’s all there.
There haven’t been any big changes to my diet, other than changing the type of milk I drink, so I just don’t know what to think!
I’m using AZO and my heating pad to help combat all the pain, and the other issues.
I should use some baking soda water as well.
I’m thankful that most of the time my IC is just an inconvience at most, but I hate the times when it really makes its presence known!
June 16, 2013
So, it has been longer than I’d like to think about since I last blogged. There’s been a lot. Another disability denial, getting my medical care underway, working (VERY) parttime, doing crafty things and finishing projects.
There have also been skin biopsies.
I have A LOT of moles. So many that there is actually a name for a person whose skin is in the condition mine is in.
And so far, the three we have results for have all been precancerous. One was bigger than the resident who did that specific biopsy thought, so it had to be redone.
The latest one to be done (on my hip/thigh area, near my buttock) is looking like the scariest one yet. This is biopsy set 2, and mole #4 to be biopsied. My doctor was very concerned when he saw it. I don’t know if it will turn out to be cancerous or just a higher level of precancer, but either way, it’s worrying.
So that’s the latest in my journey through life.
Oh, and it’s melanoma that all of this is pointing to, so the most serious of the skin cancers.
December 7, 2012
I saw a new doctor (Rheumatologist, Internist, Nutritionist) on Wednesday. I’m not sure what I think. Johnny will be going with me to my next appt, and asking his own questions to settle his own mind, then we’ll decide.
I am really more comfortable with the conventional treatments than with what this guy offers, but if he can set mine and Johnny’s minds at ease, we’ll move forward with him.
I did my labs for him today (a blood test and urinalysis)… it took 3 pokes this time to get into a vein, and then the blood was moving so slowly that she had to take off the one vial and put on another, and got the amount between the two. It hurt pretty bad too… I’m expecting bruises on at least one any time, though since she couldn’t get into that vein, it may not bruise?
Idk… we shall see what we shall see.
November 24, 2012
Abilify makes me sick, so today I stocked up on tummy remedies. Ginger Brew, 7Up, soda crackers, chicken noodle soup. Hopefully they help! (Also seen on twitter, which I copied and pasted it from.)
November 21, 2012
Posted by Jenny under Uncategorized
| Tags: babyloss
, bipolar i
, bipolar meds
, infant loss
, side effects
I have no idea how consistent I’ll be, just so you all know, but I am back to blogging here!
I’m off the haldol (It caused some scary shit that is mostly cleared up now and wasn’t all in the paperwork they give you, I’ll go into more detail when I can get to my journal), and on Abilify.
Not sure it’s doing anything for me yet, what I’m feeling may just be the result of going off the haldol.
Side effects from the abilify have included nausea/vomiting, sleep problems (which are clearing up now) and restlessness.
If it works for my bipolar I can deal with it!
On the lupus front – not so good. I’ve got to get a rheumatologist again. Nothing new, just lots of pain from the weather, and a need for more aggressive treatment so it doesn’t get worse. In the same boat with fibro.
Endo – my ovary is waking back up from it’s 2 to 3 month nap due to the haldol (I didn’t ovulate while on it) and is making me hurt pretty badly.
Grief – here’s the big one. I’ve acheived peace most days. I’m still sad, I still miss her, I always will, but there is a calmness about it all..
September 26, 2012
I was never meant to go as long as it has. .. Thats just been life conspiring against me blogging.
The latest reason I’m not posting a whole lot is because my eyes have been having problems. I suppose the problem has been with focus, but whatever it is it makes it hard to see.
My Haldol (my anti-psychotic) says it can cause blurriness… I’m not sure I’d call that the problem, but we’ll fine out when I see my doctor next month and (presumably) get moved to something else. Hopefully I’ll be back here once that clears up.
miss you all, sorry for my absence.